#and now i'm alone again more than ever
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What Happened
I'm in a very bad place psychologically and emotionally, and I can't just be vague or not talk about it anywhere to anyone anymore:
One of the people I thought was on the route toward becoming like an older sibling to me invited me to a discord group.
Everything seemed wonderful for the first couple of weeks. I hadn't made any friends or been in touch with more than one or two people in over 6 years, I'm mentally ill, queer, trans, and have a lot of social strikes against me as a result, so I was thankful to be in a small server of other queer and neurodivergent people.
We shared ideas of stress-managing and fun things to do, from cup stacking to cat's cradling. There were memes. I could talk about myself and feel safe.
My older sister was extremely cruel and abusive toward me from the time I was a baby, as well as my biological father. She resented me for taking our mother's attention away from her and never got over it. She often punished me in secret for infractions like spending too long with our mom's attention, or being too liked by her school friends and taking attention away from her.
As a result, I developed a pretty intense phobia of being the center of attention. I always feel like someone is going to come out of a crowd or the shadows and try to hurt me if I talk about myself too long, or attract positive attention from more than one person that everyone else isn't already ignoring.
I started to relax. The people I was getting to know were really, really nice to me. They were interested in what I had to say, and didn't punish me for talking too much. My ideas were received with welcome. My jokes got laughs. I started to feel like a person for the first time in my life.
Then, one day, while sharing information I'd been reading about Swedish royal history in the 1300s, which had not been validated yet and I was simply sharing due to a tenuous genetic link I happen to have and that my mom has spent a lot of her adult life researching.
I was paraphrasing in general chat to my new friends. I wasn't checking citations or anything, and the stories we were finding were still not validated, but they were interesting and added more intrigue to my family's old backstory.
Out of nowhere, a member of this server who had never introduced himself to me or spoken to me personally began attacking me. He demanded to know sources. He demanded to know how I could validate what I was being heard read to me, as if he were interrogating me for suspicion of heresy or something.
I cried. I backpedaled and apologized to him profusely while ceding the subject to him. I promised I'd never talk about it again and that I was so, so sorry for making him mad (my sister was right. my sister was right. i'm bad. i can't be safe anywhere. i'm a monster. she was right. oh god she was right. i'm a fucking monster). I showed my belly and pathetically begged him to take his Champion Argument Starter trophy and leave me alone.
He gave me a weak "Sorry," for being so cruel to me, but the damage was done.
I sat in silence in the server for weeks. Nothing was done. 2 of the 3 posted server rules were to Be Polite and Don't Be An Asshole. I hoped I would hear from a moderator that he'd been spoken to.
I wound up leaving, alone. The friends that I did like stayed behind, and aren't my friends anymore, because they chose to stay in a server with the guy that attacked me, triggered me, and sent me spiraling and sobbing and fighting blind fury at the same time.
I don't feel safe with them anymore.
A couple of members have come forward with gentle words, but I haven't had the stomach for any of them. I don't want to be attacked again. I don't want to be stupid enough to be lured into something like that again. I'm so, so painfully lonely and desperate for friends, but not that.
Please not that.
Where were you? Why didn't you help me? Why did you let that happen to me? Why didn't you stop it?
I thought we were friends.
Someone please be kind to me and mean it.
Please?
#discord#friendship#looking for friends#discord server#social phobia#social anxiety#abuse#to the couple of people from that group that may be reading these tags:#what hurt the most is i thought you cared about me#but you didn't#not enough to walk away from someone that cruel#you just apologized for him like that would make it all better#i need better than that#i deserve better than that#even though it means i'm alone now#at least it's not sonsoflogar browbeating me again#or the paranoia of knowing that if someone attacked me AGAIN you wouldn't help#i'm so heartbroken over this shit and i just want friends#i spent 6 years totally alone#and now i'm alone again more than ever#and i didn't do anything wrong but tell you i needed better#someone please reach out#please reach out#please reach out to me please please please#i just want friends#i just want people to talk to that won't HATE me for just talking without checking my sources#i can't do it anymore#i just can't be perfect in the eyes of everyone anymore#someone PLEASE reach out#someone PLEASE give me a chance to feel what it's like to be safe
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what is going on w my brain
#huge tag rant coming but dw about it#basically. if anyone here has known me on the internet for long enough yous will have gathered that i badly struggle w motivation and#fulfilling goals that i set for myself even if it's for smth i enjoy eg languages#it happens so often but especially over summer where my brain just goes Nope#“i have all this free time to do the thing I've been planning for weeks and i've been so excited about planning but now we have the time i#will be numb and sad and scroll“#i also have huge problems focusing unless every factor is perfectly balanced and even then it's still 50/50#i do have a bad attention span from being chronically online but even if you put me in a blank room w my task i'd be distracted by thoughts#external deadlines are some of the only things that can kick me into gear and i've been fine at uni so far#but i'm scared i'll have another a levels situation where my mental health was so awful i missed every essay deadline for french for 2 years#sometimes by up to a month#the only reason i got away w it is because i had a breakdown in front of my teacher and he was like “yeah take care of yourself the essays#are not that deep just get them in first thing after half term ig“#like that was v kind of him but if i ever have a situation that bad again i will genuinely fail uni cus you can't get away w that#where was i going w this (<- is aware of the irony)#right yeah this week i've experienced the epic highs and lows#highs of really enjoying my downtime and putting active effort into my hobbies instead of my downtime being “scrolling but i don't hate it”#but lows of realising how much time i 'wasted' in my teen years feeling sad and scrolling when i could have been developing skills and#having fun#and yeah i'm having a high rn and genuinely enjoying life but it's making me realise that my default state of being is just 😐#like even when i'm at uni where my mental health is so much better than at home when it's just me home alone or in my room i'm just 😐#not really having fun just existing v passively mindlessly scrolling waiting for the day to be over so i can see my friends in the morning#like not every day has to be amazing but surely there's more to life than just 😐 in 99% of your downtime#like i've struggled for years on how to answer “what do you do in your free time” cus i had to search for answers#i read and go on walks. which is true. but they were always things i did as phone breaks during weekends and not something i actively did#because i liked them#and because of past mental health issues reading and sports based hobbies have become tainted for me#i'm working on it but yeah#huge tldr. i'm finally starting to accept that i probably have a combo of undiagnosed mental illness and neurodivergence#because if it's taken me this long to realise how much it truly impacts my enjoyment of life then surely that's smth
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i really want to talk to someone, i don't care who or about what but i feel like if i don't i'll start going insane, i've been accidentally ignoring all my friends not that they've tried to contact me either but that's fine they're busy and it's not like that's something they really do anyway it's just that i can't see them in person anymore and it kind of just feels like i don't exist because No One talks to me and i barely respond anyway if they do and i Need to get better at staying in contact with people because if i don't i'll just move away and probably never talk to them again and i don't want that to happen but it Will if i don't do something and it Sucks. this Always happens. every time i start to be friends with something they leave or i leave or we just drift apart and then it's over and i've never had a single person stick around and i never Do anything and i feel like i only exist as a person inside my head and nothing i do ever really affects anyone else and i'd really like. if just for Once i could get out of my own head enough to really connect with someone. and then actually manage to keep them around
#it's not that i'm Always alone#it's just that nothing ever lasts for more than a few years and then they're gone again#there are so many people i just don't Talk to anymore#and i want to ask if they remember me like i remember them#but we've grown apart and it's been years and i can't even talk to the people who are still my friends now for some reason#why the hell am i like this. i Know it's me i'm the weak link i'm the faulty screw I'm the one that lets go#maybe no one ever cared enough to hold on to me but i never really tried to hold on to them either did i?#and the worst part is the most important times weren't anything either of us could have helped and all my best friends are just Gone now#except the one time i Could help it i'm still not doing anything#vent post#i really shouldn't let myself spiral like this but. the way it hurts does feel kind of good
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Wait, they're making another one? Oh-kaaayyyy... Not holding my breath, but hopefully it's at least better than the $h!tshow that was the second movie. (Even if that "version" of Silver is still there.) If it's any consolation, I don't know how much Sega is involved with the Sonic movies, but if it's a good bit, then maybe they can help out! At the very least, there's this amazing comment under the reveal teaser. (GOLDEN ISLAND MENTIONED)
#angry birds#angry birds movie#the angry birds movie#angry birds movie 3#the angry birds movie 3#am i the first one to tag that?#just hoping it's anywhere near as solid as the first and not the dumb unfocused slop that is the second#but seriously please don't drag silver back into this you massacred my favorite adopted piggy-turned-bird enough last time#maybe they could finally do something cool with jo like they've deserved for the past year?#then again it's likely an average-tier animated kids movie so they may not dare include a non-binary character#(then again spa's involved and spider-gwen is at least 80% likely to be trans...#...so maybe there's still hope for jo to finally get to be more than a pfp for a month)#(then again sony wants to play with ai soon so yikes)#yeah i'm still bitter that they're continuing a movie series that got killed five years ago instead of continuing better stuff#like c'mon we get an angry birds movie 3 before angry birds stella season 3 or even toons season 4?#hopefully they actually use the darn slingshots (the absence of which was one of many things that sunk the 2nd movie)#i don't know what to make of angry birds anymore considering how they murdered their renaissance before it could ever begin#(shortening and delisting the remake. making reloaded apple-exclusive. whatever on earth bad piggies 2 was.)#but i'm just hoping they can get at least one thing right this decade. just one please.#being an angry birds since 2012 and witnessing everything go to hell from 2015 onward...#...really was the perfect preparation for being a bengals fan wasn't it#welp forget everything i said about studios earlier#sega is absolutely producing it and the animation will be done by dneg who animated freaking nimona#okay NOW this just got very interesting. now i'm keeping an eye out on this.#(seriously i know dneg didn't do the most on nimona but still.#a studio involved in nimona an angry birds movie.#that combo of words alone might make my day! 2012 sorta and modern sorta would be hugging jumping up and down at that!)
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that feeling when an entire soundtrack of something is just your blorbos-coded it's inescapable
#help i am fully in my 'imagining a fully choreographed music video as i listen' era#its the arc-ane season 2 soundtrack it just is (misspelling to avoid being in the tag)#'i used to have strength but i ran out of hope / i know it's my fault that I'm here all alone' maeve my beautiful child#'how does it feel to reach the line that no one ever got to cross? does it make you a god now?' hey homeboy how you doin#'stay your pretty eyes on course / i guess i never faced my fears before' maeve being scared for annie i am chewing glass abt it#'and if you love the journey more than the end go ahead turn that hourglass around and count to ten' that's just me @ anyone who reads ttsl#and the s1 ost is just right there. Guns For Hire? Maeve betraying her people all over again. What Could Have Been? ugh my otp feels#mais ma meilleure ennemieeeee c'est toi 🎶🎵#i need to be up for work in 6 hours.
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dear Abram,
i hope there have been Gentle Moments between the Horrors. dont forget to take it easy, but Take It.
how has the Horrors been going, by the way? last posting i recall you were halfway to acquiring a Vehicle? how goes The Hunt?
with much love,
Milo
P.S.
thank you milo ;;;
there have been some gentle moments!! despite everything, there have been a few good moments this month :) including cat cuddles. i have gotten so much cat cuddles and boy did i need it.
the Horrors. man. i have now MOSTLY acquired my car! unfortunately there was a mix-up while at the bank which means i have to go back again tomorrow, and to the dealer as well, BUT the dealer was very VERY nice and he let me ""borrow"" the car i'm buying since he knew i was actively without a car right now. so the car is parked outside!! i get to drive it!! i have it now!! i just have to finish up with all the financing stuff :') and also with dealing with my sad little VW rip
the rest of the Horrors........ well. i've mostly only talked about my car here bc it's the only one that i can have any like actual control over and it's the only one where it's like "ok this is an issue and this is how it gets solved and all of these things are achievable" so i've been making myself put most of my focus on it since it IS the only issue this month that i CAN solve. the rest is stuff that. sigh. 2 of my family members died this month, one of which was my last living grandparent. and it sucks!! and my mom is currently halfway across the country having to deal with all of the paperwork and logistics of that more-or-less alone.
i know my job has bereavement leave, and i have been deeply considering figuring out how to use it so that i can go see my mom and give her some support. but i can't afford time without pay so i need to figure out if it's paid or not. OUGH.
but SOME good! like my new car being so fucking funny to me. it has push to start. it has android auto. it is so fancy. also it has roll-up windows. and little knobs for the side mirrors. i die. the contrast. her name is also Tails in honor of my favorite Sonic character. and she will be getting flower magnets.
and TSC coming out!! and rewatching Bungo Stray Dogs!!
and Blue! Blue is good too :)
#sorry for the rambling just. HHHHH.#it's hard to actually think or talk about especially with my family#cus we're all kind of going through it because of The Everything and they just aren't well known for#actually listening to me or comforting me so :')#but yay bird!!!#and also yay for blue!!#my mom is thankfully not ENTIRELY alone she does have more family out there#but#we aren't super close with most of our family so i'm grateful she has my cousins and their families out there with her#but also her sisters are... expected to be Issues. although again my cousins have apparently already offered to be body guards for her lmao#still though. it's different than having me and my siblings and my dad with her cus we're all still in GA#my dad having stayed behind so he could help us deal with the everything here#and play middle man so we could be updated on what was going on without putting it on our mom along with everything else#and just. yeah. april sucks. we hate april now. i'm so glad my birthday is only ALMOST in april but it ISNT thank FUCK.#fuck april!! worst month ever!!!!!!!#old man blue#askers#cozy-fish-crow#shh ac#okay i'm done ranting now ;;;; gonna see what sweets i might still have to consume
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#alright these tags are super embarrassing but i needed to rant publicly so uh. you can read this but please don't perceive me too much#it is so fucking exhausting having nobody to share my life with#i have literally zero friends at this point bc ever since my grandpa died i've pretty much stopped trying to keep in touch with my hometown#friends and i cut off my 'friend' group that were racist assholes who treated me like a doormat back in october and haven't really made any#close friends at college since. and i just fucking hate that this is the same way i've felt for so many fucking years like you'd think it#would be bearable at this point and i'd be used to being alone and for a while i honestly was but it just hit me tonight how fucking lonely#i am and how tomorrow i have to keep on just doing the shit i have to do in life without anyone to talk to and share it with#other than my mom who's been pissing me off lately so i've been pushing her away too!#it's so tiring to have to go out and do things and have responsibilities everyday and not being able to share that with anyone idk it makes#it feel almost like i'm carrying the weight of the world on my shoulders which is SO dramatic i know#like today i wanted to talk about the stupid false alarm gas leak thing with my sort of friends in this club i'm in but i didn't get to talk#to anyone at the meeting bc everyone was just talking amongst themselves in their little groups of best friends and it just reminded me that#i don't have that and i've never fucking had that i've only ever pretended i had that#it's like all these years i've been pretending to be a person that has friends and knows how to live life normally but i never have#more than anything i just miss my friends from home bc they're the closest i've ever felt to having friends that are like family but. i#don't know how to talk to them anymore. i didn't tell any of them when my grandpa died and i think they just assumed that i've moved on so#they've probably moved on and i already know that they have their own lives and friends at their schools that are a lot more full than mine#wanna know the worst part about all of this? i just had therapy and basically told her everything's fine#and i won't meet with her again until 3 weeks from now so literally the only person i can talk to about this right now is my mom#which i am absolutely not gonna do bc she's gonna get so scared and worried for me and i can't have that rn#anyways yeah. this isn't even that big of a deal like i haven't had friends for at least the past 6 months it's not like anything's changed#i just feel extra sad about it right now. i need a distraction stat gonna go watch watch some tv goodnight#shut up hanna
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my best friend has been very distant w me lately and i asked today if she wanted to hang out and she said she probably couldn't bc it's her brothers birthday but she would let me know if she could and i have her location and i just looked and she's at her boyfriends house rn....
#we have it bc we're roomates so we started sharing locations when we first moved in like in case someone doesn't come home at night or smth#she recently told me that she wants to move out bc she has always wanted to live alone and she can finally afford it. and i asked her#directly like is there an issue because she is so non confrontational so she has never ever mentioned me doing anything that bothers her#and i said please tell me if there's something wrong because it would really suck if there was and i never got a chance to fix it because#you never told me. and she said no it has nothing to do with that i really just feel like it's time for me to live on my own. and a couple#days ago she was like okay i'm next in line for my apartment i'll probably move out in april. and i try to get her to hang out still and#she always has something else going on and i swear every night this week she's been at her boyfriends.#and if i see her around our apartment and try to make conversation at all she's so like short about it and barely responds like will only#give one word answers. i feel like it kind of started when i started dating e but i realized that i was spending less time with her and i#didn't want to be the girl that loses all my friends bc of a boyfriend so i started specifically reaching out to hang out with her and she#says no most of the time and never asks me. like i don't know what else i can do.#i'm like maybe it's bc of her boyfriend? bc they've been on again off again for a long time and previously when they were together it was#really distant with her like i barely saw her EVER. and they were mostly broken up for the past couple years and have been together i think#for a while again... but she knows i don't approve of that relationship and so she would like not say when they were talking again. so maybe#since lately they've been hanging out or dating or WHATEVER she doesn't fucking tell me what's going on with him. maybe that's why.#i literally like try to think of ways it could be my fault and maybe i'm being crazy but i cannot even think to blame myself for more than a#fleeting second bc i'm like. i have ASKED HER directly if there is an issue or something i do that bothers her and she says no. so even if#i'm somehow pissing her off would i ever know to change anything?? i just feel so frustrated bc it's like she's an entirely different person#to me. like this is not the person i know. and i don't know what else i could possibly do like i feel like we need to sit down and have a#conversation about it but what good does that do if she just acts like nothing is wrong. but i don't want to lose my friend i have such a#hard time making friends. i've known her since i was 14 like i can't imagine my life without her. we were the only two in our whole friend#group in high school to get out of the church i still love those other girls but we have so little in common now.
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Just the other day I was chatting with an older woman about this exact thing. She's retired so she enjoys going on almost-daily walks around her neighborhood and the surrounding neighborhoods. Well she told me that it was really weird that in the newer constructions where the younger families live, EVERYONE has their blinds closed all the time. In fact she can tell a younger family lives in a house based on the simple fact of whether or not their blinds are closed in the middle of a sunny day. It's to the point where she can't even tell if they're even HOME and available for a visit to welcome them to the neighborhood!
When she said that, I realized that I do that too when I live in a more publicly visible apartment. I told her that I think it's because of the internet. Younger people feel like we're constantly being watched, observed, and JUDGED for merely existing. So when we're home, we just want to be alone, unbothered, and unobserved because it's the one place we can control that. She was very surprised to hear that I felt like that and she was VERY concerned for us young folk (and to be honest after talking with her I became pretty concerned too...)
People from her generation will have their blinds open all day, hang out on their front porch, and randomly visit/enjoy random visits from neighbors and strangers. If a stranger knocks on my door it's scary and if they want to stay and chat? It's a huge inconvenience and it feels super awkward and weird and I'm stuck wondering why exactly they're talking to me, when just a few decades ago welcoming someone new to the neighborhood was just what you did! In fact to not do so was rude!
It made me really worried that as the Panopticon sinks its teeth deeper into our psyches, we are losing the very essence of what makes us human and got us this far as a species: community. I find that being on the internet for hours a day tends to almost trick my brain into thinking "I've been social all day, my social need is full" when in reality I've only talked to one, maybe two people I know from my real life all day, and only for short bursts, not REAL conversation.
I find it hard to have the energy to invite friends to hang out, and when I want to I feel like I'm a big inconvenience for asking them to take a break from their busy lives for me (not that they would ever say that's the case, but it's this nagging feeling internally). I feel like while we used to be a series of large islands of local community, our islands splintered apart and started drifting away from each other. Now your island is just you, your immediate family, and maybe a couple close friends. Those living physically closest to you feel like they're miles away and unreachable, to the point where you might as well not even bother.
I guess I just have one question for you: Do you know the names of your next door neighbors?
#there was another woman just a couple years older than me in the conversation as well and she agreed with me#what happened to us?#community#if you don't have a physical local community please find one you don't think you need it until you suddenly do and wish you had one#i only know ONE of my neighbors (across the hall) and i live in a huge complex#and i only know them because we coincidentally met on Nextdoor without knowing we were neighbors#if it weren't for that i would've never knocked on their door or said hello or even acknowledged their existence further than a smile#but they're actually super nice and good friends! unfortunately we're moving this week so we won't be seeing much of them now#i want to make more of an effort to meet neighbors but it just fills me with this awful anxiety ugh#I'm glad i found our local UU church and joined it so i do have a physical local community#but i had to go out of my way and i think that's the issue: going out of my way#you have to decide to go out and join a church or club sport or tabletop group and it's hard to do that!#we aren't taught how to do that gracefully or even how fundamentally necessary it is to us as humans!#it's like our social need is seen as unimportant or at least way less important than our hunger and sleep and hygiene needs#even though again our ability to communicate and form community is what allowed us to evolve to this point#it's just so frustrating and i can barely figure out how to solve the problem for myself let alone as a whole societal/generational thing#i just stay in my apartment all day invisible to the world feeling safe in my anonymity#as if that isn't on some level denying the very thing that makes me human#we're more connected than ever but we're also more lonely than ever. the fuck#I'm rambling now i need to stop#this whole post addition was originally tags but i felt it was important enough to actually add to the post#aa
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What a good episode. Maaaaaan
#I can't even start I'd be here forever#It did take me in fact like one hour total to watch it lmoa. It sooooo good!!! The animation is very good#(albeit it's awfully low on brightness at times. But such seems to be the sin of lot of recent media unfortunately)#but I'm not even going to dwell on that. The plot / storytelling is so good. Sooooo god. I adore this arc.#Love the symbolism. I've been saying this for almost two years now (is it really been that long ever since these episodes came out... ) but#I want to write an analysis on the op & ed so baddd. The emphasis on the twilight this episode!!#Like the sun was setting on the detective agency. I love love love the hd. They're so cool in this episode and they're so cool in general.#I ADORE Jouno. I don't feel particularly strongly for sue/giku yet their scenes are so cute and funny. I see why people ship them.#Even Tetchou I don't usually care much about is so !!!!! I love all the hd so much fr!!!!!!!!!!#I love love love Jouno. Like much like it is for Akutagawa I'm very weak for characters that aren't really good people.#But they're still trying to be a better person than they were. And oftentimes they end up doing a terrible job!!#But the fact alone that they're //trying// has me ougheueueueu. Here in this episode you can see Jouno–#sliping very easily in his cruel / sadistic habits. But he is trying to be a person that cares for others! He made good actions in the past#and he will again in the future even though right now he's acting like this! Because improvement isn't linear! I love him tonsss#And DON'T get me started on the ada. Yosano's “Welcome” scene. I love women. I love women. Yosano please one chance#KENJI'S SCENE God I needed this. How could I forget the way this literllyyyyy rewinded my brain when I read the manga for the first time.#That scene is so deep and poignant and so so meaningful I. Oughhh#I am going to run out of tags am I not#Kyouka saving Atsushi!!!!!!! That scene is one of my all time favourites. It makes me soft to remember when the s4 trailer dropped–#I was so overjoyed for that bit of them holding hands :') Rightfully so!!! It's so cute.#Her coming back to save Atsushi. The “don't worry– I didn't kill them” direct towards Atsushi–#that is so so Akutagawa and it sends me insane hhhhhhgggggggggg#Kunikida!!!!! His “I'm not leaving anyone behind”!!!!!!!!!!!! I'm not precisely Kunikida's first fan but aaaaaahhh he makes me feel–#so much for him in this scene!!!!! Mmmhhh one last note would be. It bugs me a little how the ada is defined terrorist by the military–#forces starting this episode? I don't have space to elaborate properly but. An action to be considered terrorism must have clear political–#orientation and goal. Violence alone isn't enought to be defined terrorism. It's an incorrect use of the word#Up to the next episode!!! Can't wait to see more Atsushi 🥰🥰#random rambles#It's late now and probably most are asleep rn... Then I'll be queing my posts for tomorrow probably
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#suddenly I'm wondering if i may be a bigger peoblem than originally thought#i know my boyfriend has many faults and so do i#and i cannot handle his any longer#but now I'm wondering if that is merely because i quit my meds some time ago#and it's catching up with me#either way#i still think he needs to go#i need my alone time again#i never ever get any for longer than a couple minutes#on rare occasion maybe an hour#definitely not more than that in the last nine months#i hate this#i feel auffocated#and trapped#and ready to implode#anywho#something more to contemplate#might be time to get back on the meds anyway#might help#personal
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THANK YOU.
Tbh I did not expect you to actually respond and add to this post, but I am THOROUGHLY grateful you have. But I also would like to inform you(and anyone else that's uncertain about their ability to repost this)
Self diagnosis is valid.
Being officially diagnosed is a luxury.
Often one that is usually only given to those that show extreme or undeniable traits. And even then, you still could be denied.
I was 12 when I was diagnosed with autism. People have known something was "off" since I was 4.
I was able to feel the sideways curves in my spine and see that my shoulders were uneven before I got diagnosis for "mild" scoliosis at 19, after living a life complaining of back and rib pain.
I've felt my joints, all the way from my fingers to my toes, all fall out of place since I was 10, often times having to have my own mother massage my knees back into place so that I could walk, and even spraining my ankles simply going upstairs. All of which fell on deaf ears for the entire 20+ years of my life despite countless professionals, from muscular skeletal to rheumatoid specialists and even physical therapists confirming that I have hEds and possibly early signs of rheumatoid arthritis. And yet they still cannot diagnose it because they "can't treat it"
And the reason I say all of this is because I used to worry the same thing. If maybe by claiming this diagnosis as my own, that somehow I was doing something wrong. Or taking something away from someone else. However, I want to let you all in on a little secret.
If you're actively experiencing symptoms, you're not faking it.
You might label the symptoms wrong, yes, but that doesn't mean that they're not there. People get officially misdiagnosed all the time! Because a lot of medical things have a bunch of overarching symptoms that overlap! And you could have so many things going on all at once!
And sure. You're not a doctor. So you might miss something or assign too much importance to it, but that's fine! You're allowed to make mistakes!
Unless you are actively pushing a harmful narrative or making life harder for them, you are not taking anything away from those who are officially diagnosed.
Wear your headphones in public, ask your friend to lower the music, buy a shower chair and lie to the cashier telling them it's for your grandma, pick up a super fluffy stuffed animal just because the texture is calming, take a look at the cool little canes at the thrift shop, do whatever helps you.
There's enough headphones and shower chairs and weighted stuffed animals for the rest of us to enjoy. You're not wasting anything that you find useful. And also, sometimes your friends are just slightly deaf and used to feeling the bass shake their entire car. It's okay to tell them that you're not.
It's okay to ask for some help bringing your groceries out to the car.
It's okay to ask someone to repeat what they said a third time.
It's okay to ask if you can see something again to make sure that you understand.
It's okay to tell people you'd rather not be touched right now.
It's okay to tell people that you want to be touched after telling them previously not to!
It's okay! And this even goes for nondisabled people too! Please reblog this post, even if you have nothing to say or add. Because maybe then, it might find it's way to somebody else who needs it. Whether that be a friend or loved one, a beloved moot, a follower, or just some random homie who comes across it by chance.
Even if you just like the way things are said, or think that the words are nice, that's more than enough reason to throw this post on your blog.
So go for it.
Press the nice shiny button.
Be an ally.
I dare you.
Local PSA: invisible disability does NOT mean you can live your life like a "normal person" invisible disability meant that if a stranger looks at you in public they wouldn't know what's going on.
Like if a wheelchair user were to decide to run into a corner store to grab a candy bar because they know that their legs can last that long without, the cashier wouldn't know.
Or someone with "mild" scoliosis walking upright through their shoulder leans slightly to the left. Maybe they just have bad posture. The lady in the next isle thinks to herself.
The person with EDS or POTS or whatever sort of condition wearing compression gloves out and about. Perhaps it's a fashion statement?
Or what about the people with intestinal issues? They can look like "normal people" too.
You never know what someone is going through.
You never know what they might need to survive or if they're on the edge of a flare up or even if they are currently going through one just by one look.
I think both disabled and non disabled need to realize this. You're not "no longer disabled" because you can "live without" disability aids. They're there to help you. To make your life easier. If living without a cane is going to make it more likely you'll fall over and hurt yourself, use the cane.
If you need to sit down to do dishes or cut vegetables because you need to save your legs for taking out the trash, sit down.
If you need a shower chair because you don't know if you'll pass out, use the shower chair.
People are going to judge you regardless for multiple reasons out of your control.
I'd rather they judge you while you're being safe.
You don't need to struggle to be "normal."
You can just be you.
However that looks for you.
Use your disability aids.
#obviously I'm being a little silly#y'all don't have to do anything if you're TRULY unsure or don't want to#but like it's possible#you could do it#i actively encourage it actually#the amount of people who've been reached by this post alone is so much more than i could have ever dreamed#and since it's picking up traction yet again#i think it's nice that so many people are able to share all of their stories with me again#because like#i love you#you know?#i love listening to you all talk#i love hearing about how you've connected with others experiences and how you feel less alone#that is literally what this post was for#this post was born out of my own isolation as I began experiencing what it meant to truly have an invisible disability#one that impacted my day to day life in such large ways despite everyone else being nonethewiser and even doctors insisting that i was fine#a lot of the original disabilities that I included in the original post ARE based off of my personal experiences! like the compression!#or sitting down to do tasks. i STILL do that! even now that my legs are stronger.#and now look at us#all of us are slightly less alone now. look at us go.#I'm proud of us.#so yes#everyone's allowed to share this post#disabled or not#you'll never know who needs it#late diagnosed autistic#self diagnosis#self diagnosis is valid#diagnosis#invisible disability
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It really sucks having to be bored out of my mind every single day because I have no friends, no job, no way of even accepting money so even if I did get a job I couldn't be paid, nobody to look forward to talking to and nobody who actually enjoys my presence so I'm completely alone and all I have to do is be on my phone, be on my laptop, stare at the wall or the ceiling or take a nap.
I don't even really have a reason to look at my phone anymore and haven't in years because, again, I have nobody to talk to or look forward to talking to and nobody who actively wants to talk to me so all I do is open tumblr and scroll for a few minutes before closing it, and I avoid instagram to the best of my ability so I'm not tempted to contact my fp or think about them or anything
#I'm struggling so hard to come to terms with the fact that my fp seemingly couldn't give q fuck if I were dead or alive at this point#they haven't checked on me even once#and like. I get we really only jsut started talking before I started isolating myself like this#but it hurts. why can't they care about me as much as I care about them???#why is it so much to ask to just have someone love ke and care about me as much as I do others???#why can't it ever be me?? why can't I be loved by them???#why can't it be me?????#sometimes I wonder if they really even want to get close to me#I feelnlike they couldn't give less of a shit about anything I have to say#and they clearly don't care about me enough to check on me#even though i have been VERY open on jnstagram about what I'm going through and why i'm avoiding talking to people rright now#I guess once again I'm too mentally ill to be loved by someone I care about#my ex fp who J trusted and loved more than anyone else and was willing to do anything for couldn't love me#she abandoned me the second she got the chance#I just wish my current fp would abandon me already and get it over with#it's going to be painful enough when they finally realixe how much of a burden i am to put up with#and how embarrassing I am to be seen with#why can't they just do it now. just get it over with so i can go back tk beinf completely alone and unloved as usual#what am i saying i'm already alone and unloved lol
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one day i wish to understand exactly what was my parents' modus operandi for my childhood because i cannot for the life of me figure out the logic but also there HAS to be some kind of underlying belief to it because i turned out with mom-n-dad-shaped fundamental flaws to my character
#my current theory is based on how i tend to treat my pet and friendships/social interactions in general & how similar it feels to them#i think they have to make like. a conscious effort to remember i'm a human person with needs and wants more complex than a tamagochi#ESPECIALLY when i was younger#i see how short-tempered i can be and i think my dad just didn't register that threatening and mild violence could be harmful to a kid#cuz in the moment it's child is misbehaving -> thunder and wave fists around -> child is no longer misbehaving#tears are temporary fear is temporary what matters is that the child is no longer annoying and it's for the greater good for everyone#and i'd say the same thing can be applied for socialization a bit#though i'd also have issues w that if i had the best parents ever i think cuz. autism or whatever.#anyway like i think they just didn't pay much attention? that i was struggling?#they're all proud that they barely ever put me in daycare like okay i don't have siblings or kid neighbors or. anyone most of the time.#what do you expect?#it's a snowballing issue and it's hard to correct once it's rolling but like. wow you're modelling such a good example mom n dad#you barely have friends that you never see#mom works all the time. dad needs a lot of time to watch sports games. kid me plays alone again.#kid me starts being mildly bullied in kindergarten and learns patterns of social interaction that it will repeat for its entire life#so it's just like HA i spent A Time with you child replenish the social interaction bar now#and that's not enough to raise a child#broadcasting my misery#vent
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Plus I mean I guess at least if he locks me up somewhere I won't havta think anymore
#no more responsibilities or stress or decisions#just do what i'm told n stay put#i'll learn to like it#i'm more scared that he'll just leave me in there alone than i am of anythin he might actually do#but. he always kinda needs someone around n we're all he has now so it wouldn't last long#i just.....hope i won't ever need to handle things out here again if it happens#if someone does find me n get me outta there#cause there'll be nothin left to fix after what he'll do to me n i don't think i'll learn to function on my own again#it's just. catastrophic thinkin. worst case scenarios. he's not gonna actually do it he's not gonna risk everythin just for that#but god i'm so fucking scared#i just want a fucking life i'm so tired of barely scrapin by every damn day#i'm so fucking tired of bein scared all the time#spdrvent
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I don't know, here's my problem with all that gratitude stuff people are always pushing
I'm here finding myself grateful for the really bad unexplained stomach problems I had for months that randomly flared up so bad I couldn't leave the house safely somedays (literally missed my last doctor's appointment cause it turned out that wasn't a day to be out and about)
Like unprompted, not as some kind of exercise or something, I find myself being like "yeah it may have royally sucked, but it really has helped me get a feel for how my stomach is doing so maybe I appreciate it"
Feel like that's fairly gratitude minded when you can find yourself being grateful for basically months of being sick, you know?
...so fuck off an let me be. If me organically being grateful for a painful time in my life where a lot of nights I'd be worried about going to sleep and dealing with issues so bad I was worried about how I was gonna be able to take this trip unless I got lucky... if I just on my own end up being grateful for that and still want to put a bullet in my head, maybe gratitude isn't a cure all
Maybe piss off with it, you know? I'm the first to say it's good to be grateful for shit, and frankly even walls (even when there's insulation issues) are a fucking blessing and I'll always thank my house for everything it does for me
Still not a magic bullet against depression and I get fucking sick of everyone talking like it is one... like if I just gratituded harder I'd feel better
#as always; this is why I have my no advice without being willing to help implement it policy#I don't get to tell people what to do to feel better#I just get to offer support and get stuck in with helping try to change things for the better for them in my small ineffective ways#and you know they may never feel better; and that would fucking suck cause they deserve to#but I'm not gonna make them feel bad for being open and honest about how they're doing#and I'll just keep telling them the things I like about them till maybe one day they can internalize it#and... and I'll keep trying to do the small things I can to help support them in making changes#or if at all possible directly participate in making a change for them#rather have someone be miserable and honest about it than ever try to spare my feelings#no I never want them to be doing bad but I'd rather try to just sit with them through it than make them sit alone#and I'd rather fix it all... but sometimes neither of us fucking can right now... and it's time to wait with them#had someone dealing with a real shit situation#and you know what? I knew the exact fix for the shit situation#but here's the problem... people can't do shit till they're ready and me trying to force it would have made it worse#so I just hung out and let them vent and repeatedly made sure they knew they were making sense; validated their perception of reality#made an introduction so they had more people around who'd be in their corner building them up instead of tearing them down#eventually they made the fix I knew was the fix all along and it hurt like hell to do it#and yet things started getting better pretty much immediately; cause it was always the problem#and if I could go back and do it again I'd do it the same; I wouldn't force the fix any sooner cause it had to be their choice#and frankly me pushing could have sabotaged shit#and it's still hard; and often all I can do is sit with them as they ride shit out right now and... I don't like that#I want to fix things in every way for them; they deserve that#but I can't... so I'd rather be with them as things are than make them repair everything so I feel comfortable#that's my opinion on all this#and frankly if you want to dig up my nasty bitter fucking side I try to keep tamped down#this shit is a good way to bring that side of me out#like fuck off; either you're gonna help or you're being a fucking busy body#and you can shove your advice up your ass cause spoiler I fucking tried it#I never stop putting one foot in front of the other and it's got me a house and I cleaned that fucking trailer#so how about you stuff it if you don't like how miserable I am
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